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Make Visible: Understanding Complex Illness

Visible with Emily Kate Stephens

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The podcast shining a light on invisible illness. Emily Kate Stephens, journalist and Long Covid sufferer, discusses the latest research and insights with the world’s leading experts, scientists and healthcare professionals. Including ME/CFS, Long Covid, EDS, Fibromyalgia, POTS, and more, we dive into the science of energy-limiting, complex illness. Join us every two weeks. To find out more about the work that Visible is doing, using wearable technology to measure and manage complex chronic ...
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Wearable Progression

Wearable Progression

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Wearable Progression is a podcast about all things wearables and running. We talk with technology experts, industry analysts, running coaches, professional runners and other interesting personalities to discuss everything from how wearables can help runners perform better, to what drives runners to run. This podcast is hosted by Kinematix. Kinematix has dedicated several years to developing the best technology to extract meaningful information about body movements during daily activities, ai ...
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The Adventure Jogger

Steven Kornhaus

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Every runner has a unique story, and we're here to tell them all. From elite athletes leading the pack to everyday runners finding joy in the middle or back of the pack, we celebrate the heart, grit, and humor that make this community so special. Join us for laughs, insights, and the unexpected adventures of runners everywhere! Support the podcast on Patreon https://www.patreon.com/theadventurejogger Watch episodes on YouTube https://www.youtube.com/channel/UC-H4tQM21wO37E7G-bvK3Cw
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The Trial Better Podcast is ERT’s best practices series for clinical trial research. In this series, we discuss the factors that determine a successful clinical trial. Topics we cover are patient engagement, data architecture, FDA guidelines, wearable devices and much more. With our expert guests, we explore how to address the many unseen obstacles of clinical research.
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Interactive Health Technologies uses wrist-based wearable PE heart rate monitors and assessment technology to support students from kindergarten through graduation. Through personalized learning during physical education and physical activity coupled with an innovative curriculum, we empower students to take ownership of their health and well-being while supporting teachers and administrators in measuring and connecting student outcomes between fitness, academic progress and social and emoti ...
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In this episode of The Adventure Jogger Podcast, Valan Kornhaus shares her journey from a reluctant high school runner to an ultra runner, navigating the challenges of military life, motherhood, and mental health. She opens up about returning to running after childbirth, battling postpartum depression, and finding solace on the trails. Valan’s stor…
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In her latest paper Suzanne Vernon, PhD, Scientific Director at the Bateman Horne Center, reveals that ME/CFS prevalence is now 15 times higher than pre-pandemic estimates. The study, carried out by the RECOVER initiative, and published in the Journal of General Internal Medicine confirmed that ME/CFS has a 4.5% prevalence among those who did not r…
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In this episode of The Adventure Jogger, Steven Kornhaus talks with Dr. Sean Roach, founder of Aletheia Run, about his mission to revolutionize injury prevention. As a runner and physical therapist, Sean shares how his cutting-edge wearable device analyzes running mechanics, providing data-driven insights to help athletes run stronger and stay inju…
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Bill Bradley’s journey is one of resilience, reinvention, and relentless determination. After building a video rental empire, he lost everything when Netflix disrupted the industry, leading to bankruptcy. But instead of giving up, Bill found purpose in ultra-endurance sports, tackling brutal challenges like Badwater, the Arrowhead 135, and multiple…
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Sam Werner takes on one of the most unique running challenges yet—the Chipotle Challenge, a competition to log the most segments near a Chipotle restaurant. He shares his intense training, fueling strategies, and the mental toughness required to win. From barefoot running to conquering Colorado’s 14ers, Sam reflects on his journey, recent marathon …
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When Suzy Bolt developed Long Covid in 2020 she searched for ways to understand her condition and began to create an online community of like-minded people traversing similar health situations. From her dark bedroom she found many others looking for answers, validation and ideas to help them navigate their illnesses, and from this she started to de…
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When Suzy Bolt developed Long Covid in 2020 she searched for ways to understand her condition and began to create an online community of like-minded people traversing similar health situations. From her dark bedroom she found many others looking for answers, validation and ideas to help them navigate their illnesses, and from this she started to de…
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Dr. Michael VanElzakker’s mission is to identify the individual drivers of post-viral illnesses. “How do you find something when you don’t know what you’re looking for?” he asks, believing that COVID-19, whilst a disaster for humanity, is giving us the opportunity to establish practises to identify those unknowns and establish more unbiased researc…
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Arman Fesharaki-Zadeh is a behavioural neurologist and a neuropscychiatrist whose primary focus has been treating patients with cognitive deficits – from Alzheimer’s to Traumatic Brain Injury (TBI). Since 2020 a considerable portion of his clinic at Yale Medicine have been Long Covid patients and he noticed similarities in symptoms with post-concus…
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Amy Arnsten, PhD, is a Professor of both Neuroscience and Psychology at Yale University, where she runs her own lab which studies and teaches about the brain’s higher cortical circuits and their molecular regulation. In this week’s episode we discuss Prof. Arnsten’s recent paper published in Biological Psychiatry looking at the impact of stress (bo…
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Trail runner Anatoly Ross shares his journey from running in the USSR to conquering some of the toughest ultra races, including the Canadian Death Race, Eastern States 100, and Barkley Fall Classic. He discusses the ethics of trail running, balancing a medical career with training, and the mental and physical battles of endurance racing. Anatoly al…
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In this episode of the Adventure Jogger podcast, host Steven Kornhaus interviews Nick Kovar, who shares his inspiring journey from road running to trail ultramarathons, overcoming challenges like injury and hip replacement surgery. Nick talks about his first ultra at the Georgia Jewel, his experiences with the Smoky Challenge Adventure Run, and the…
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In this episode of the Adventure Jogger podcast, host Steven Kornhaus welcomes back Andy Jones Wilkins to discuss their personal journeys with hip surgeries, including hip resurfacing and hip replacement. They explore the early signs of hip issues, the decision-making process for surgery, the experiences of recovery, and the mental impact of living…
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In this episode of the Adventure Jogger podcast, host Steven Kornhaus chats with Morgan Schick, a trail runner and YouTube creator renowned for his hilarious and inspiring videos about trail running. Morgan takes us on his journey from despising running to embracing the ultrarunning lifestyle, sharing how he combines his passion for storytelling wi…
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In this episode of the Adventure Jogger, Matt Kornegay shares his transformation from a casual runner to a 100-mile ultra marathoner. He dives into the pivotal moments of his journey, lessons from his first ultras, and the impact of community and resilience in the face of challenges. Matt’s story is a testament to the power of perseverance and pass…
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In this episode, Steven Kornhaus chats with Colorado Springs runner Ted Schultz about his inspiring journey from soccer to trail and ultra running. Ted shares highlights from iconic races like the Leadville 100, Pike's Peak Ascent, and the grueling Incline-a-thon. With stories of perseverance, growth, and pushing limits, Ted offers valuable insight…
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In this Adventure Jogger Christmas Special, host Steven Kornhaus reunites with Ryan, AJW, and friends for a festive mix of running stories, laughs, and holiday cheer. They dive into winter running mishaps, bizarre dog encounters, post-run cravings, and the ultimate debate: could Santa crush ultras? The crew also reflects on lessons from 2024, goals…
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John Hardin returns, along with crew chief Keith Overbay, to the Natchez Trace for redemption, chasing the Fastest Known Time (FKT) after a prior attempt fell short. He shares the highs and lows of his journey, from grueling challenges and injuries to the unwavering support of his crew. This episode dives into the history of the Natchez Trace, the …
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In this episode, triathlete and ultra runner Brandon Shiflett shares his journey from Ironman World Championships to conquering ultra trails like the Indiana Trail 100. He dives into race strategies, heart rate training, family support, and the mental grit needed for endurance sports. Takeaways: Brandon’s endurance journey began with a sprint triat…
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In this Adventure Jogger episode, Lauren Paulson shares her inspiring journey of celebrating her 50th birthday with 12 races in 12 months. From triathlons to ultras, including her first 100K & 100 Miler and the Rim to Rim to Rim of the Grand Canyon, Lauren reflects on training, resilience, and the joy of racing with friends. Takeaways Lauren is run…
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In this episode of the Adventure Jogger podcast, Steven Kornhaus chats with Brooke Wanzer, a Nashville-based runner who transitioned from competitive swimming to trail running while navigating the demands of law school. Brooke shares her journey into ultra marathons, her record-setting run at the Natchez Trace Marathon, and how she balances trainin…
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In this conversation, Kenneth Anderlitch shares his experiences with long-distance running, particularly focusing on his journey from Washington, DC to San Antonio. He discusses the challenges he faced during his runs, including physical trials, navigation issues, and the motivation behind his runs, which are tied to his mission with Families in Re…
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Peter Bruce, an Australian runner who shares his journey from high school athlete to ultra marathoner, detailing his struggles with hip dysplasia and the impact it had on his sports career. Peter discusses his decision to transition from basketball to running, the challenges he faced with his hip issues, and his experience undergoing hip replacemen…
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Lucinda Bateman, M.D. has been seeing patients, learning about, and educating about ME/CFS and fibromyalgia for decades. She is Chief Medical Officer of the Bateman Horne Center, Salt Lake City, whose mission is “improving access to informed health care for individuals with ME/CFS, Long COVID, and fibromyalgia by translating clinical expertise into…
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In this episode, Joe Jude returns to share his incredible experiences on the Appalachian Trail, reflecting on his past achievements and the challenges he faced during his journey. Joe Jude shares his experiences hiking the Appalachian Trail, detailing the challenges and triumphs he faced from Virginia to Georgia. He recounts a particularly difficul…
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In this episode of the Adventure Jogger, host Steven Kornhaus interviews Gill Flanigan, who shares his unique journey into running, starting later in life and transitioning from road races to ultra marathons. Gill discusses his unconventional gear choices, including running in combat boots and cargo shorts, and reflects on his experiences preparing…
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In this episode, Hunter Leininger returns to share his experiences from the Ultra Gobi race, a grueling 400-kilometer self-supported ultra marathon in China. He discusses the unique challenges of the race, including navigating unmarked terrain, the high altitude variations, and the extensive production level of the event. In this segment of the con…
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In this conversation, ultra runner Ivo Steyaert shares his journey from a casual jogger to a world record holder at the Bigs World Team Backyard Championships. He discusses his early experiences in ultra running, the transition to the backyard format, and the challenges faced during various races, including injuries and mental hurdles. Ivo emphasiz…
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In this week’s episode renowned cardiologist Dr. Boon Lim returns for Part 2 of the conversation with Emily Kate Stephens, presenting three clarifying analogies to represent a wider view of the impact of acute stress on the autonomic nervous system, and its role in complex chronic illness. Dr. Boon Lim uses the poem The Blind Man and the Elephant t…
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In this episode of the Adventure Jogger podcast, host Steven Kornhaus welcomes Scott Perry, an ultra runner who shares his journey from a casual runner to an ambassador for the trail running community. Scott discusses his early experiences with running, the transition to trail running, and the importance of community in the sport. He also shares in…
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Brad shares his journey from a competitive lacrosse player to an ultra runner, detailing his struggles with addiction and how running and sobriety transformed his life. He discusses his experiences with triathlons, the differences between triathlons and ultra marathons, and the importance of community and accountability in maintaining a healthy lif…
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Director for the Center for Healthy Aging Research at the Rutgers Institute for Health, Dr William Hu is a cognitive neurologist: he studies and treats patients whose thinking is affected by disease. Typically Dr Hu was dealing with Alzheimer's and related dementias in patients who were cognitively ageing whilst otherwise healthy, and those whose c…
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In this episode of the Adventure Jogger podcast, host Steven Kornhaus interviews Tara Dower, an accomplished ultra runner who recently set the fastest known time on the Appalachian Trail. Tara shares her experiences, challenges, and the extensive planning that went into her FKT attempt. The conversation covers her vlogging journey, the logistics of…
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In this episode of the Adventure Jogger podcast, host Steven Kornhaus interviews ultra runner Meg Landymore, who shares her inspiring journey from gymnastics to ultra running. Meg discusses her struggles with injuries, eating disorders, and the impact of pregnancy on her running career. She highlights her transition to ultra running, her experience…
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DJ Fox shares his remarkable journey from a health scare that led to surgery to becoming an accomplished ultra runner and obstacle course racer. He discusses his experiences with various endurance events, including the Spartan Ultra Beast and the World's Toughest Mudder, and his attempts at setting a Fastest Known Time (FKT) on the Colorado Trail. …
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n this conversation, Ryan Van Duzer shares his journey as an ultra runner, bike packer, and YouTube content creator. He discusses his early experiences with running, the impact of physical activity on his health, and his love for community events like Burning Man and Leadville 100. Ryan also delves into his transition to bike packing, the importanc…
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Cardiologist Dr Boon Lim describes himself as an electrician of the heart. Extremely experienced in surgically repairing heart rhythms, he is also an expert in treating Postural Orthostatic Tachycardia Syndrome (POTS) and related autonomic conditions. His approach to the diagnosis and treatment of both the symptoms and pathophysiology of these diso…
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Jennifer Russo discusses her experiences in ultra running, particularly in backyard ultra races. She shares her achievements in races such as the Long Haul 100 and Ohio's Backyard Ultra, where she finally won after multiple attempts. Jennifer also talks about the challenges she faces with stomach issues during races and her experimentation with dif…
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Kris Rugloski shares her journey into trail running and obstacle course racing (OCR). She started with OCR and found her passion for running through these races. She gradually progressed from shorter races to ultra distances, including a 50K and a 100-miler. Kris also discusses her knee injury and the recovery process, including physical therapy an…
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The Patient-Led Research Collaborative (PLRC) are a group of patient researchers who aim to facilitate patient-led research into infection-associated chronic conditions. Since their inception they have published numerous papers and articles including a complete review of the Long Covid findings in January 2023 in Nature, an article on designing cli…
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Hunter Leininger discusses his recent adventures, including running the Florida Trail and being part of a team that climbed the highest peaks in all 50 states. He also shares his experience of running across Iceland, covering a distance of approximately 370 miles in six and a half days. The conversation covers topics such as the challenges of unsup…
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Colleen Miracle, an ultra runner and musician, shares her journey into running and the challenges she has faced along the way. She started running again a few years ago after taking a break to focus on rock climbing. Colleen fell in love with ultra running during the pandemic and has since completed over 20 ultras, including multiple 100-mile races…
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Introducing Make Visible, the podcast shining a light on complex chronic illness. Join us every two weeks as journalist Emily Kate Stephens uses her experience of living with an energy limiting condition to bring us the latest research and insights from the world’s leading experts, scientists and healthcare professionals. Including ME/CFS, Long Cov…
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Ines Beernaert, a 16-year-old runner, shares her experience running the Marathon des Sables, a 250-kilometer ultra marathon across the Sahara desert. She was inspired by her father, who ran the Marathon des Sables in 2001. Ines set a goal to run the race at the age of 16 and raised £10,000 for the Make-A-Wish charity. The race required participants…
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Alex Gold shares his running journey, from high school track to college cross country and trail running. He discusses his experiences in ultra marathons and the challenges he faced. Alex also talks about the Ohio to Erie Run Club, a running program he started in a prison in Lebanon, Ohio. The program aims to provide inmates with a positive outlet a…
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In this episode of the Adventure Jogger podcast, host Steven Kornhaus interviews Tony Gross, a trail and ultra runner who is also the mayor of Kingston Springs, Tennessee. They discuss Tony's journey into politics and his accomplishments as mayor, including expanding the sidewalk system and establishing a farmer's market to promote walkability and …
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Colin Morris shares his journey into running and his experience at the Leadville 100 race. He started running in 2020 after facing challenges in his personal and professional life. Inspired by podcasts and ultra runners like David Goggins and Courtney Dauwalter, Colin decided to push his limits and train for the Leadville 100. In his first attempt,…
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Brian Vermillion, an experienced athlete in kayaking, mountain biking, trail running, and ultra running, joins Steven Kornhaus on the Adventure Jogger podcast. They discuss Brian's recent win and course record at the Fort Frenzy 12-hour race, as well as his journey in various sports. Brian shares his transition from kayaking to running, starting wi…
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Mike Thompson, a multi-disciplinary athlete, shares his journey in various sports, including soccer, triathlon, and trail running. He discusses his experiences in road running, weightlifting, and mountain biking. Mike highlights the importance of cross-training and the benefits it brings to his performance. He also talks about the shift in dynamics…
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In this conversation, Ryan announces that he will be retiring as the host of the Adventure Jogger podcast, but the podcast will continue with a new host, Steven Kornhaus. Ryan expresses his confidence in Steven's ability to carry on the podcast's mission of sharing great stories from runners of all levels. They discuss the importance of highlightin…
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