Best Jon Strum Podcasts (2025)

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Episode 389: Overcoming the Stigma of MS with Denise Schnieders and Fox Rigney 34:17

5d ago34:17

34:17

Living your best life with MS means learning to overcome the stigma of having a disability, successfully navigating social relationships, and learning how to ask for and accept help. Joining me to share their perspectives and their experiences in overcoming some of these social obstacles are Denise Schnieders, who was diagnosed with MS just about a…

1
Episode 388: Understanding Gut Health and MS with Dr. Ashutosh Mangalam 37:08

13d ago37:08

37:08

When we talk about myelin damage, most of us typically think of the brain. After all, that myelin is located in your central nervous system. But the inflammation that causes myelin damage may be triggered by activity that's taking place well south of your central nervous system, in your gut microbiome, the colony of trillions of bacteria and microo…

1
Episode 387: Inside the TEAAMS Study with Ashli and Victoria 34:28

20d ago34:28

34:28

The TEAAMS study examines the effects of a remotely delivered, racially-tailored exercise training program among African-Americans with MS, who are living in low-income areas of the Southeastern United States, which is a part of the country that doesn't have many primary care or MS clinics that provide full exercise and rehabilitation services for …

1
Episode 386: When to Seek Immediate Medical Care for MS with Dr. Kalina Sanders 33:13

27d ago33:13

33:13

MS symptoms can worsen, and relapses can occur. And when that happens, how do you know whether you require immediate medical care? When is it time to go to the hospital? Dr. Kalina Sanders joins me to talk about when it's time to seek immediate medical care for MS. Dr. Sanders is a board-certified neurologist who specializes in multiple sclerosis a…

1
Bonus Episode: Understanding Healthcare Provider Burnout -- How Patients and HCPs Can Work Together to Support Each Other 11:47

1M ago11:47

11:47

This special episode of RealTalk MS is sponsored by EMD Serono and is only intended for a U.S. audience. EMD Serono is the healthcare business of Merck, KGaA, Darmstadt, Germany, in the United States and Canada. In this special episode of RealTalk MS, Dr. Mary Rensel and Amanda Montague join me to explore HCP (Healthcare Provider) burnout and patie…

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Episode 385: A New Year Means New Benefits for Many People Affected by MS 30:43

1M ago30:43

30:43

The new year brings with it several significant benefits for many people affected by MS. We're reviewing how the nearly 400,000 people with MS who rely on Medicare for their health insurance will save thousands of dollars, how people with MS who currently have medical debt will see a big improvement on their credit report, and how people who fly wi…

1
Episode 384: Behavioral and Lifestyle Risk Factors for MS with Dr. Jared Bruce and Dr. Amanda Bruce 33:45

1M ago33:45

33:45

There are genetic risks associated with MS, there are demographic risks of experiencing a more severe disease course, and there are also behavioral and lifestyle risks that will increase the chance that someone will be diagnosed with MS. Joining me today to discuss behavioral and lifestyle MS risk factors and how they can be mitigated are Doctor Ja…

1
Episode 383: Revisiting ECTRIMS 2024 with Dr. Bruce Bebo and Kristine Werner Ozug 28:24

2M ago28:24

28:24

One of the most important MS research events every year is the annual European Committee for Treatment and Research in MS Scientific Congress, usually referred to by its acronym, ECTRIMS. You've made our podcast episode that followed ECTRIMS the most downloaded episode of the year. So, this week, I'm revisiting the two conversations that I had imme…

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Episode 382: Revisiting Women's Health Issues and MS with Dr. Anna Shah and Dr. Rhonda Voskuhl 33:48

2M ago33:48

33:48

The holiday season provides me with an opportunity to indulge in what's become a RealTalk MS tradition. I reserve the last two episodes of the year to revisit the most compelling and important conversations that I've had over the past year. This week, I'm revisiting two conversations I had with two experts on MS and women's health issues. MS affect…

1
Episode 381: Measuring Your MS Disease Status? There's an Evidence-Based App for That! with Dr. Charisse Lichtman 32:24

2M ago32:24

32:24

There's an alarming shortage of neurologists in the United States. That shortage makes it hard to be seen by a neurologist and, in some regions of the U.S., you may not even find an MS specialist without having to travel hundreds of miles. The good news is now there's an app for that! Joining me to talk about how an app called BeCare is already cha…

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Episode 380: Thriving in Cold Weather with MS with Dr. Lisa Doggett 27:44

2M ago27:44

27:44

If you're living with MS, you've probably already learned that hot weather, hot baths, or anything that causes your body temperature to increase can quickly cause your symptoms to worsen. But winter can also be a challenging time. Less daylight, frigid temperatures, ice, and snow can all have an impact on MS. Dr. Lisa Doggett returns to the podcast…

1
Special Episode: Aging with MS with Dr. Leorah Freeman 20:01

2M ago20:01

20:01

Disease-modifying therapies work, and, as a result, people with MS are living longer. With half the MS population over the age of 55, it's never been more urgent to understand how the process of aging impacts MS and how MS impacts the process of aging. In this special episode of RealTalk MS, Dr. Leorah Freeman discusses the many factors associated …

1
Episode 379: The Pros and Cons of Participating in MS Research with Dr. Kathy Zackowski and Mimi Brown 31:28

3M ago31:28

31:28

More effective treatments and even cures for MS can only happen as a result of clinical research. And clinical research can only happen when people living with MS choose to become research participants. But what are the pros and cons that you should consider when you're thinking about participating in MS research? The National MS Society's Associat…

1
Episode 378: An MS Care Partners Roundtable with Barbara, Marina, Matt, and Maiya 34:55

3M ago34:55

34:55

Too often, care partners remain invisible as they deal with the emotional, physical, and even financial burdens that go along with supporting a loved one who's living with multiple sclerosis. November is National Family Caregivers Month, and I'm devoting this entire episode to a roundtable discussion with four remarkable care partners as they share…

1
Episode 377: The Art of Hope with Lydia Emily 36:22

3M ago36:22

36:22

There are some people who, once you meet them, it's impossible to forget them. They seem to leave an indelible impression. Lydia Emily is one of those people. Whether it's through her art that occasionally escapes the canvas to be expressed as massive urban murals proclaiming End MS, or through her outspoken MS advocacy. Lydia Emily is a force. Now…

1
Special Episode: Pregnancy and MS with Dr. Riley Bove 21:17

3M ago21:17

21:17

MS affects almost 3 times as many women as men, often affecting women of childbearing age. In this special episode of RealTalk MS, Dr. Riley Bove answers some of the important questions about the impact of MS on a woman's pregnancy and the impact of pregnancy on a woman's MS. This special episode of RealTalk MS is sponsored by Viatris. SHARE THIS E…

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Episode 376: Adding Dance, Music, and Art Therapy to Your MS Treatment Plan with Dr. Francois Bethoux 33:18

3M ago33:18

33:18

On this podcast, we tend to talk a lot about new technologies, emerging treatments, the most recently approved disease-modifying therapies, and even some DMTs that haven't yet been approved. And in the midst of all that cutting-edge research and evolving science, it's easy to lose sight of the fact that expressive therapies like dance and movement …

1
Episode 375: Managing Teenage MS with Dr. Ann Yeh 32:47

3M ago32:47

32:47

Being a teenager is hard. So, imagine for a moment that in addition to everything else that teenagers have to endure, you're a teenager who's been diagnosed with MS. Your ability to participate in after-school activities or just hang out with your friends is impacted by MS-related fatigue. The typical adolescent anxiety over something someone poste…

1
Episode 374: Grieving When You're Living With MS with Dr. Holly Hendin 37:01

4M ago37:01

37:01

Learning to live with MS is learning to live with loss. For some, those losses may be minor and seem relatively insignificant. For others, those losses can be huge and life-altering. The definition of grief is an emotional response to a significant loss. It's not unusual to grieve over those things in your life that have been lost due to MS. In fac…

1
Episode 373: ECTRIMS Research Roundup Part 2 with Dr. Bruce Bebo 27:45

4M ago27:45

27:45

Now that he's had a chance to digest all of the research presented at ECTRIMS, Dr. Bruce Bebo, the National MS Society's Executive Vice President of Research, is back to share the key research presented at the largest MS research conference in the world. This episode of RealTalk MS is the perfect follow-up to my initial conversation with Bruce, whi…

1
Episode 372: Medicare Changes That Will Affect You in 2025 with Sarah Anderson 29:28

4M ago29:28

29:28

Open enrollment is underway! And if you're one of the 25% of people living with MS who get their coverage through Medicare, there are some major changes coming in 2025. So, it's especially important that you review your prescription drug coverage to make sure you're enrolled in the Medicare Part D plan that's best for you. Sarah Anderson, pharmacis…

1
Episode 371: A Difference-Making Mobility Device with Dee Ecklund and BE Alink 38:35

4M ago38:35

38:35

In the seven years that I've been hosting RealTalk MS, no one has ever described a mobility device as life-changing. That is until listener Dee Ecklund reached out to tell me about her experience with the Alinker. One of my goals in producing this podcast is to introduce the RealTalk MS listener community to people who are difference-makers. And De…

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ECTRIMS Extra: Results from the Tolebrutinib Phase 3 Clinical Trial for Relapsing MS with Dr. Jiwon Oh 8:06

5M ago8:06

8:06

With more than 9,000 MS researchers and clinicians in attendance, the 2024 ECTRIMS meeting in Copenhagen was the largest MS research conference in the world. During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS EXTRA conver…

1
Episode 370: Understanding the Updated Pathways to Cures Research Roadmap with Dr. Bruce Bebo and Shawna Golden 31:34

5M ago31:34

31:34

In 2020, the National MS Society convened the Pathways to Cures Think Tank. I shared news and interviews from what I considered a historic meeting back in Episode 125 of RealTalk MS. The information shared and the work generated by that Think Tank led to the Pathways to Cures Global Summit in 2023. In Episodes 297and 298 of RealTalk MS, I shared ne…

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ECTRIMS Extra: Revisions to the Way MS is Diagnosed with Dr. Peter Calabresi 9:04

5M ago9:04

9:04

With more than 9,000 MS researchers and clinicians in attendance, the 2024 ECTRIMS meeting in Copenhagen was the largest MS research conference in the world. During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS EXTRA conver…

1
ECTRIMS Extra: Rachel Horne and Professor Kerstin Helwig 11:48

5M ago11:48

11:48

With more than 9,000 MS researchers and clinicians in attendance, the 2024 ECTRIMS meeting in Copenhagen was the largest MS research conference in the world. During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS EXTRA conver…

1
Episode 369: ECTRIMS 2024 with Kristine Werner Ozug and Dr. Bruce Bebo 30:32

5M ago30:32

30:32

ECTRIMS 2024, the largest MS research conference in the world concluded last week, and in this week's episode, we'll be hearing two slightly different perspectives on which news, announcements, and presentations stood out at this year's meeting. The ECTRIMS conference can feel almost overwhelming. You find yourself among 9 or 10 thousand other atte…

1
ECTRIMS EXTRA: New Course Descriptors for MS with Dr. Fred Lublin 7:26

5M ago7:26

7:26

With more than 9,000 MS researchers and clinicians in attendance, the 2024 ECTRIMS meeting in Copenhagen was the largest MS research conference in the world. During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS EXTRA conver…

1
Episode 368: Living a More Purposeful Life with MS with Dr. Evan Smith 34:50

5M ago34:50

34:50

Living with the unpredictability of MS sometimes feels like riding a rollercoaster. As you experience the twists and turns of life with MS, you can sometimes feel unmoored from the person you thought you were. You can sense your priorities, motivations, and values shifting. And, in those moments, it becomes easy to lose your sense of purpose. Clini…

1
Episode 367: Budgeting for Living with MS with Bruce McClary 34:46

5M ago34:46

34:46

Living with MS is expensive. A recent study funded by the National MS Society found the average cost of living with MS in the United States is $88,487 a year. Even with insurance, that can turn out to be a heavy lift. One thing you don't need is to be worrying about money while you're already worrying about MS. So, when I think about discussing bud…

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Episode 366: Medicare and MS -- Getting Your Ducks In a Row with Laquel Thomas 35:13

6M ago35:13

35:13

Most of us know Medicare as health insurance for Americans who are 65 or older, but when they qualify for Social Security disability benefits, people younger than 65 automatically qualify for Medicare. Today, between 25 and 30% of the people living with MS are Medicare beneficiaries. Whether you already have Medicare or you'll be signing up for Med…

1
Episode 365: It's the Episode Where I Get Interviewed with Jon Strum 41:35

6M ago41:35

41:35

If you're a regular listener, you know that I rely on the RealTalk MS listener community to let me know which topics you'd like to hear about on this podcast. A few years ago, in episode 264, listener Dawnia Baynes did a podcast takeover, and interviewed me. Since then, I've heard from a bunch of you who, for some reason, want to hear more about me…

1
Episode 364: Understanding the Signs and Symptoms of MS with Dr. Leorah Freeman 30:09

6M ago30:09

30:09

Getting an MS diagnosis is not always the quick, straightforward process we'd like it to be. For some people, the process can drag on for years. But getting that diagnosis only happens when you and your primary care physician recognize that something's going on. It might be a sudden vision issue. Maybe it's unexplained tingling in an arm or leg. Or…

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Episode 363: Safe Driving When You're Living with MS with Jenny Nordine, OTL, CDRS 32:57

6M ago32:57

32:57

For some people, getting in their car and heading for, well, anywhere represents freedom and independence. For others, it's a way to get to their jobs, get to their medical appointments, get the kids to school, and run necessary errands. MS can change all of that. Occupational Therapist and Certified Driver Rehabilitation Specialist Jenny Nordine j…

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Episode 362: The Role of Integrative Medicine in Treating MS with Dr. Lynne Shinto 29:33

7M ago29:33

29:33

Integrative medicine brings conventional and complementary treatments together in a coordinated way. This approach to health and wellness represents a growing trend across the United States, especially among people who live with a chronic disease like MS. Dr. Lynne Shinto joins me to explain what integrative medicine is and how to safely incorporat…

1
Episode 361: Meet the new President and CEO of the National MS Society with Dr. Tim Coetzee 30:23

7M ago30:23

30:23

Less than two weeks ago, the National MS Society announced the appointment of Dr. Tim Coetzee as its new President and CEO. The MS Society's board chair, Peter Porrino, commented, "Tim is a trusted voice of the global MS community, a highly respected scientist, and we are excited for him to bring his transformative leadership to drive us into our n…

1
Episode 360: How Digital Technology Is Changing the Diagnosis and Treatment of MS with Dr. Riley Bove 30:44

7M ago30:44

30:44

It's hard to imagine any area of our lives that hasn't been transformed by digital technology. That's certainly true for healthcare in general and MS diagnosis and treatment in particular. Dr. Riley Bove joins me to discuss the role that digital technology already plays in the diagnosis and treatment of MS and to share a preview of what's coming ne…

1
Episode 359: The Unraveling with Dr. Nara Michaelson 31:06

7M ago31:06

31:06

As Harvard Fellow Dr. Nara Michaelson treated women who had been recently diagnosed with MS, she recognized they shared characteristics that she had observed in victims of violent domestic abuse. Dr. Michaelson's observation led her to write The Unraveling, an essay that highlights the fear that can accompany the uncertainty of living with MS. Dr. …

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Episode 358: VISIBL-MS with Dr. Jaime Imitola 33:06

7M ago33:06

33:06

The inequities associated with gaining access to quality healthcare are often discussed, and my guest this week has taken steps to address them. Dr. Jaime Imitola and his team at UCONN Health have created a tool called VISIBL-MS, a bilingual framework designed to increase doctors' and patients' awareness of the early signs of MS. We'll also share t…

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Episode 357: Living Your Best Life When You're Living with MS with Dr. Lisa Doggett 28:51

8M ago28:51

28:51

When it comes to living your best life when you're living with MS, the first step is to make smart lifestyle choices. Maintaining a healthy lifestyle doesn't require pills, injections, or infusions. And making smart lifestyle choices can make a real, measurable difference in your quality of life. Joining me to talk about the benefits of maintaining…

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Episode 356: A Final Conversation with National MS Society President and CEO, Cyndi Zagieboylo 33:04

8M ago33:04

33:04

Over the course of her 39-year career with the National MS Society, including the past 13 years as its President and CEO, Cyndi Zagieboylo has been a driving force behind major initiatives that have fundamentally changed the MS treatment and research landscape. Creating a world where cures for MS are now within reach, Cyndi has led the work to make…

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Episode 355: The NARCOMS Patient Registry with Dr. Robert Fox 28:29

8M ago28:29

28:29

Research is the engine that drives the future. And participating in MS research is not only vital to improving scientists' understanding of multiple sclerosis, it's also empowering. And the really good news is that you can participate in MS research from the comfort of your own home. My guest this week is the Managing Director of the North American…

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Episode 354: From the Consortium of MS Centers 38th Annual Meeting -- Part 2 40:05

8M ago40:05

40:05

Two weeks ago, thousands of clinicians, nurses, physician's assistants, rehabilitation experts, and others traveled to Nashville to attend the Consortium of Multiple Sclerosis Centers 38th Annual Meeting. This is Part 2 of our coverage from that meeting. In this episode, we're sharing our conversations with some of the experts who were at the meeti…

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Episode 353: From the Consortium of MS Centers Annual Meeting with Dr. Kathy Zackowski and Dr. Stephen Krieger 35:42

9M ago35:42

35:42

Last week, thousands of clinicians, nurses, physician's assistants, rehabilitation experts, and others traveled to Nashville to attend the Consortium of Multiple Sclerosis Centers 38th Annual Meeting. Welcome to Part 1 of our coverage from that meeting. In this episode, I'm talking with Dr. Kathy Zackowski, Associate Vice-President for Research at …

1
Episode 352: World MS Day with Rachel Horne 28:23

9M ago28:23

28:23

May 30th is World MS Day, and we're taking this opportunity to look at some of the challenges faced by people with MS around the world. Global economics and the peculiarities of different healthcare systems make fundamental issues like access to quality healthcare and affordable MS medications difficult for many and impossible for some. U.K. journa…

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Episode 351: Managing Stress When You're Living with MS with Dr. Grace Tworek 29:01

9M ago29:01

29:01

We've reached a moment in time when it seems impossible to avoid at least some level of stress in our lives. We also know that stress has been shown to make MS symptoms worse and even trigger relapses. We can't eliminate all the stress in our lives, so learning how to manage and minimize stress is an important part of living well with MS. This week…

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Episode 350: Choosing Your MS Disease-Modifying Therapy with Dr. Barbara Giesser 34:45

9M ago34:45

34:45

There are more than 20 disease-modifying therapies available to treat MS today. Some are considered high-efficacy, some are considered moderately effective, and each has its own risk profile and side effects to consider. So, how do you choose? How much homework should someone living with MS do? Where should you look for reliable information? And wh…

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Episode 349: From the International Advisory Committee on Clinical Trials in Multiple Sclerosis Aging and MS Workshop (Part 2) 44:15

10M ago44:15

44:15

As we age, our bodies undergo biological changes. Our immune system changes. Our brain changes with age. Our cognitive abilities change, as do our physical abilities. These changes impact everyone. But these biological processes may impact people with MS differently. And MS may impact these biological processes differently. Just a couple of weeks a…

1
Episode 348: From the International Advisory Committee on Clinical Trials in Multiple Sclerosis Aging and MS Workshop (Part 1) 29:34

10M ago29:34

29:34

As people age, their immune systems change. Their level of physical and cognitive reserve changes. They often develop additional health issues. They frequently experience changes in their mobility. And these are people who aren't living with MS. When you combine the health issues related to aging with the health issues that are related to MS, you e…

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Episode 347: Vitamin D and MS with Dr. Ellen Mowry 33:38

10M ago33:38

33:38

Lower levels of Vitamin D have been associated with a higher risk of developing MS and an increase in MS disease activity. And, for years, scientists have worked to better understand the relationship between Vitamin D and MS. Joining me to talk about the role that Vitamin D plays in MS is Dr. Ellen Mowry. Dr. Mowry is a Professor of Neurology and E…

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