Best Vascular Institute Podcasts (2024)

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145: An Interview With Sandy Siegel, Founder and President of the Siegel Rare Neuroimmune Association 16:10

9h ago16:10

16:10

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sandy Siegel, founder and president of the Siegel Rare Neuroimmune Association. Siegel started the charity 30 years ago with his wife, Pauline, after she was diagnosed with transverse myelitis. After Pauline's death in 2017, the organization expanded to include five other rare …

1
144: An Interview With Anastasia Vishnevetsky, MD, MPH, on the Use of Cannabis to Treat NMOSD 16:32

5h ago16:32

16:32

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Anastasia Vishnevetsky, MD, MPH, of Massachusetts General Hospital and Harvard Medical School. Dr. Vishnevetsky is heading a groundbreaking clinical trial of the cannabinoid spray nabiximols in treating the symptoms of NMOSD.By Rare Care Podcast

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143: An Interview With Ignacio Muñoz-Sanjuan, PhD, President and Founder of Factor-H 16:07

9d ago16:07

16:07

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Ignacio Muñoz-Sanjuan, PhD, the president and founder of Factor-H—a Los Angeles-based nonprofit organization that works to alleviate extreme poverty among people with Huntington disease in Venezuela, Colombia, and Peru.By Rare Care Podcast

1
142: An Interview With Amy Case, MD, Chief Medical Officer of the Pulmonary Fibrosis Foundation 16:30

17d ago16:30

16:30

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Amy Case, MD, chief medical officer of the Pulmonary Fibrosis Foundation, about the importance of passing the bipartisan Supplemental Oxygen Access Reform (SOAR) Act, which is currently stalled in Congress.By Rare Care Podcast

1
141: An Interview WIth Steve Van Wormer, Cofounder and Director of the Phaware Global Association 12:02

24d ago12:02

12:02

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Steve Van Wormer, cofounder and director of the Phaware Global Association. Van Wormer became a patient advocate after his late son, Lucas, was diagnosed with pulmonary hypertension at age 4.By Rare Care Podcast

1
140: An Interview With Victor Test, MD, Chair of the Pulmonary Vascular Disease Program at Texas Tech School of Medicine in Lubbock 12:49

29d ago12:49

12:49

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Victor Test, MD, an expert in pulmonary arterial hypertension (PAH). Dr. Test is a professor of medicine and chair of the pulmonary vascular disease program at Texas Tech School of Medicine in Lubbock.By Rare Care Podcast

1
139: An Interview With Drew Harris, MD, Expert on Black Lung Disease 12:55

1M ago12:55

12:55

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews pulmonologist Drew Harris, MD, an associate professor of medicine at the University of Virginia in Charlottesville. Dr. Harris is also medical director of the Black Lung Program at Stone Mountain Health Services, in the heart of southwestern Virginia's coal-mining industry.…

1
138: An Interview With Mahesh Desai, PhD, of the Luxembourg Institute of Health 9:47

2M ago9:47

9:47

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Mahesh Desai, PhD, of the Luxembourg Institute of Health’s Department of Infection and Immunity. Dr. Desai discusses how healthy gut bacteria may reduce the side effects of chemotherapy in cancer patients.By Rare Care Podcast

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137: An Interview With Karin Hoelzer, DVM, PhD, Senior Director of Policy and Regulatory Affairs at NORD 9:44

2M ago9:44

9:44

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Karin Hoelzer, DVM, PhD, senior director of policy and regulatory affairs at the National Organization for Rare Disorders (NORD). Dr. Hoelzer discusses the importance of convincing the US Congress to renew the Rare Pediatric Disease Priority Review Voucher Program, which is set…

1
136: An Interview With Susan Ward, PhD, Founder and Executive Director of the Collaborative Trajectory Analysis Project (cTAP) 15:32

3M ago15:32

15:32

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Susan Ward, PhD, founder and executive director of the Collaborative Trajectory Analysis Project (cTAP), which seeks to broaden patient eligibility for clinical trials in Duchenne muscular dystrophy.By Rare Care Podcast

1
The Connection Between Obstetrics and Cardiovascular Disease 15:11

3M ago15:11

15:11

Pregnancy can be a stress test on the heart. Learn from Dr. Shashi Gavini how pregnancy, childbirth and obstetric history are important when assessing cardiovascular risk. Visit www.cardio.com for more information or to schedule an appointment with one of our providers.By Cardiovascular Institute of the South

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135: An Interview With Taylor Kane, Founder and Executive Director of 'Remember the Girls' 11:15

3M ago11:15

11:15

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Taylor Kane, founder and executive director of 'Remember the Girls.' The charity advocates for female carriers of X-linked rare disorders including Duchenne muscular dystrophy and hemophilia.By Rare Care Podcast

1
134: An Interview With Dr. Jeffrey A. Cohen of the Cleveland Clinic on Cellular Therapies for MS 10:25

3M ago10:25

10:25

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews neurologist Jeffrey A. Cohen, MD, of Ohio's Cleveland Clinic on the latest developments in cellular therapies to treat multiple sclerosis.By Rare Care Podcast

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133: An Interview With Maureen Juip, Secretary of the Friedreich's Ataxia Research Alliance and Mother of 2 Children With FA 8:58

3M ago8:58

8:58

By Rare Care Podcast

1
133: An Interview With Jacquelyn Bainbridge, DPharm, of the University of Colorado, on Cannabis Therapy for MS 12:20

3M ago12:20

12:20

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jacquelyn Bainbridge, DPharm, a neurology professor at the University of Colorado in Aurora, on the benefits of medical cannabis in treating multiple sclerosis.By Rare Care Podcast

1
When Should You See a Cardiologist? 12:12

4M ago12:12

12:12

Prevention saves lives. Dr. Bart Denys explains the diagnostic tests available, the significance of knowing your numbers, and why you should see a cardiologist earlier than later, whether or not you feel any symptoms. Visit www.cardio.com for more information or to schedule an appointment with one of our providers.…

1
132: An Interview With Michelle C. Werner, CEO of Alltrna 14:44

4M ago14:44

14:44

By Rare Care Podcast

1
131: An Interview With Dr. Flavia Nelson of the University of Miami on Treatment Options for NMOSD 13:02

4M ago13:02

13:02

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Flavia Nelson, MD, director of the Multiple Sclerosis Center of Excellence at the University of Miami in Florida, on the difficulties of diagnosing neuromyelitis optica spectrum disorder.By Rare Care Podcast

1
130: An Interview With Kevin M. Flanigan, MD, Director of the Center for Gene Therapy at Nationwide Children's Hospital in Columbus, Ohio 10:06

5M ago10:06

10:06

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Kevin M. Flanigan, MD, director of the Center for Gene Therapy at the Abigail Wexner Research Instute of Nationwide Children’s Hospital in Columbus, Ohio. The subject of our talk is exon skipping therapies for Duchenne muscular dystrophy.…

1
129: An Interview With Durresamin Khan, Pakistani Mother of a Boy With Duchenne Muscular Dystrophy 8:31

5M ago8:31

8:31

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Durresamin Khan, the Pakistani mother of a boy with Duchenne muscular dystrophy, about the difficulties of obtaining treatment for DMD patients who are ineligible for gene therapy.By Rare Care Podcast

1
128: An Interview With Jenny Huang, Mother of SMA Patient and MIT Math Whiz Benjamin Lou 15:00

5M ago15:00

15:00

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Jenny Huang, whose son, Benjamin Lou, is an award-winning math major at MIT who also has spinal muscular atrophy.By Rare Care Podcast

1
When Should You Go to the ER for Chest Pain? 13:27

5M ago13:27

13:27

Tune in as Dr. Sandeep Patel explains what chest pain may feel like, the signs to watch out for, and how to know if an ER visit may be needed. Visit www.cardio.com for more information or to schedule an appointment with one of our providers.By Cardiovascular Institute of the South

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127: An Interview With Omer Abdul Hamid, MD, of Nemours Children's Hospital in Orlando, Florida 14:02

5M ago14:02

14:02

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Omer Abdul Hamid, MD, a neurologist at Nemours Children's Hospital in Orlando, Florida, on gene therapy's potential to treat Duchenne muscular dystrophy.By Rare Care Podcast

1
126: An Interview With Pamela Gavin, New CEO of the National Organization for Rare Disorders (NORD) 14:23

6M ago14:23

14:23

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Pamela Gavin, the newly appointed CEO of the National Organization for Rare Disorders (NORD).By Rare Care Podcast

1
125: An Interview With Patricia Weltin, Founder and CEO of Beyond The Diagnosis 17:59

6M ago17:59

17:59

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Patricia Weltin,founder and CEO of Beyond the Diagnosis—a nonprofit that uses art to raise public awareness of children with ultra-rare diseases.By Rare Care Podcast

1
125: An Interview With Sarah Glass, PhD, of the n-Lorem Foundation 16:36

6M ago16:36

16:36

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sarah Glass, PhD, chief operating officer of the n-Lorem Foundation—and the mother of a boy with an ultra-rare disease.By Rare Care Podcast

1
124: An Interview with Dimitrios Karussis, MD, PhD, on Stem Cell Therapy for Multiple Sclerosis 14:47

6M ago14:47

14:47

By Rare Care Podcast

1
Electrical Functions of the Heart 12:53

6M ago12:53

12:53

Electrophysiologist Dr. Ryan Gullatt helps us to understand atrial fibrillation and irregular heart rhythms, including what symptoms to look out for and what types of treatments are available. Visit www.cardio.com for more information or to schedule an appointment with one of our providers.By Cardiovascular Institute of the South

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123: An Interview With Mary Morlino, Patient Navigator at the Undiagnosed Diseases Network Foundation 11:15

6M ago11:15

11:15

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Mary Morlino, who has sarcoidosis and is the patient navigator for the Undiagnosed Diseases Network Foundation.By Rare Care Podcast

1
Illuminating Strokes: Shining a Light on Cultural Considerations within the Spanish-Speaking Community with Fiona Smith 21:56

7M ago21:56

21:56

Fiona Smith, a PhD student at the Cizik School of Nursing at UTHealth Houston and Stroke Coordinator at Houston Methodist Sugar Land Hospital, recently joined the Institute for Stroke and Cerebrovascular Diseases Stroke Busters podcast to discuss her research on stroke awareness within the Spanish-speaking community. Smith's passion for improving s…

1
122: An Interview WIth Tracy Sharp, a Patient With Lambert-Eaton Myasthenic Syndrome 13:46

7M ago13:46

13:46

By Rare Care Podcast

1
121: An Interview With University of Pennsylvania Neurologist and CIDP Expert Chafic Karam, MD 4:13

7M ago4:13

4:13

By Rare Care Podcast

1
A Stroke Survivor Story: Katie and the SUPER Study 14:41

7M ago14:41

14:41

Young Stroke Survivor's Inspiring Journey Highlights the Power of Resilience, Support, and Research Katie was a healthy, active 27-year-old professional from Seattle starting her career, living life, and never expected it to be upended by a stroke. She woke up one morning and began her day like any other when suddenly her life changed forever. Kati…

1
Understanding the Valves of Your Heart 17:01

7M ago17:01

17:01

Think of your heart valves as the windows and doors of the heart! Dr. Phillip Smith explains structural heart disease, valve disease, the symptoms and the innovative treatments available for these conditions. Visit www.cardio.com for more information or to schedule an appointment with one of our providers.…

1
120: An Interview with Avner Reshef, MD, Top Israeli Expert in Hereditary Angioedema 17:11

7M ago17:11

17:11

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Israeli expert Avner Reshef, MD, director of the Allergy, Immunology, and Angioedema Center at Barzilai University Medical Center in Ashkelon, only a few miles from the border with war-torn Gaza.By Rare Care Podcast

1
119: An Interview With Pediatric Neurologist Edward Smith, MD, on the FDA Approval of Vamorolone for Boys With Duchenne Muscular Dystrophy 15:58

7M ago15:58

15:58

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews pediatric neurologist Edward Smith, MD, about the recent approval of vamorolone, a synthetic corticosteroid, in boys with Duchenne muscular dystrophy.By Rare Care Podcast

1
118: An Interview With Sharon Hesterlee, PhD, Chief Research Officer at the Muscular Dystrophy Association 7:58

7M ago7:58

7:58

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sharon Hesterlee, PhD, chief research officer at the Muscular Dystrophy Association, about the recent proliferation of gene therapies and other treatments for neuromuscular diseases.By Rare Care Podcast

1
117: An Interview With Ira Walker, the Muscular Dystrophy Association's 2024 National Ambassador, About Living With Spinal Muscular Atrophy 12:02

8M ago12:02

12:02

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Ira Walker, the Muscular Dystrophy Association's 2024 National Ambassador, at the MDA's 2024 Clinical & Scientific Conference in Orlando, Florida. Walker, 39, has spinal muscular atrophy (SMA) type 2.By Rare Care Podcast

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116: An Interview With Seema Lalani, MD, Director of Project GIVE, a Pediatric Rare Disease Screening Program in the Rio Grande Valley of Texas 11:34

8M ago11:34

11:34

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Seema Lalani, MD, of Baylor College of Medicine in Houston, Texas. Dr. Lalani directs Project GIVE (Genetic Inclusion by Virtual Evaluation), a pediatric screening program in the impoverished 4-county Rio Grande Valley region of southern Texas.…

1
Stroke Busters Podcast w/ Gail Cooksey, Research Coordinator 19:47

8M ago19:47

19:47

Welcome to the Stroke Busters Podcast! I'm your host, Amy Quinn, and I'm thrilled to take you on a journey into the fascinating world of stroke research and innovation. Join me as we delve into the latest breakthroughs and insights from the Institute for Stroke and Cerebrovascular Diseases at UTHealth Houston. At the Stroke Busters Podcast, we're o…

1
Blood Clots in the Legs: What You Should Know 10:05

8M ago10:05

10:05

Blood clots may form in the legs and become dangerous to your health. In this episode of The Cardiovascular Pulse, Dr. Matthew Finn explains how these clots form, the dangers, the symptoms and the new, advanced treatments for these conditions, pulmonary embolism and deep vein thrombosis. Visit www.cardio.com for more information or to schedule an a…

1
115: An Interview With Matt Trudeau of ITF Therapeutics, on Givinostat as a Therapy for Duchenne Muscular Dystrophy 9:52

8M ago9:52

9:52

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Matt Trudeau, head of ITF Therapeutics—a division of Italy's Italfarmaco—on treating Duchenne muscular dystrophy with givinostat, a histone deacetylase inhibitor.By Rare Care Podcast

1
114: An Interview With Thomas Holm Pedersen, PhD, Cofounder and CEO of Denmark's NMD Pharma 14:34

9M ago14:34

14:34

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Thomas Holm Pedersen, PhD, cofounder and chief executive of NMD Pharma, a Danish company that's pursuing the use of chloride channel 1 (ClC-1) as a novel target for restoring muscle function in both myasthenia gravis and spinal muscular atrophy.…

1
113: An Interview With Courtney Silverthorn, MD, Associate VP of Science Partnerships at the Foundation for the National Institutes of Health 12:19

9M ago12:19

12:19

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Courtney Silverthorn, MD, of the Foundation for the National Institutes of Health (NIH) about the NIH's Bespoke Gene Therapy Consortium.By Rare Care Podcast

1
Recent Publications From The BASIC Study: A Texas Story w/ Dr. Lewis Morgenstern 24:10

9M ago24:10

24:10

Welcome back to Stroke Busters where we bring you groundbreaking research and expert insights from the Institute for Stroke and Cerebrovascular Diseases at UTHealth Houston. Our team is committed to unraveling the mysteries surrounding strokes, those unexpected interruptions to the blood flow in the brain that can have life-altering consequences. O…

1
112: An Interview With Cristol Barrett O'Loughlin, CEO of Raregivers 12:52

9M ago12:52

12:52

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Cristol Barrett O'Loughlin, founder and CEO of Raregivers—a nonprofit organization that offers mental health and wellness services to those caring for people with rare diseases.By Rare Care Podcast

1
Beyond the Heart: Exploring Peripheral Vascular Disease 17:18

9M ago17:18

17:18

Your cardiovascular system includes both your heart and your legs. Dr. Craig Walker, founder, president and medical director at Cardiovascular Institute of the South, explains the importance of screening and treatment for vascular diseases in the legs. Keep up with the latest in cardiovascular news and medicine and follow us on social media! Facebo…

1
111: An Interview With Omar Kamlin, MD, Senior Medical Director at Orphalan 15:08

9M ago15:08

15:08

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Omar Kamlin, MD, senior medical director at French drugmaker Orphalan, whose therapy, Cuvrior, treats Wilson disease.By Rare Care Podcast

1
Association Between Body Mass Index and Functional Outcomes in Patients With Intracerebral Hemorrhage w/ C.J. Jared Chen, MD and Andrea Becerril Gaitan, MD 19:13

9M ago19:13

19:13

From the Institute for Stroke and Cerebrovascular Diseases at UTHealth Houston, today, we delve into a fascinating study exploring the intriguing concept known as the "obesity paradox" in patients with spontaneous intracerebral hemorrhage (ICH). Joining us are two esteemed guests, Dr. Jared Chen and Dr. Andrea Gaitan, who played integral roles in t…

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110: An Interview With Melinda Bachini, Chief Patient Officer at the Cholangiocarcinoma Foundation 18:20

10M ago18:20

18:20

Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Melinda Bachini, chief patient officer at the Cholangiocarcinoma Foundation, about a new study detailing the burden on caregivers of people with cholangiocarcinoma.By Rare Care Podcast

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Vascular Institute Podcasts

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